We have been so busy since our move to Vegas, I’m sorry I haven’t had a chance to update our blog lately. But hopefully I’ll be able to dive back in. Our list for Laura’s appointments is still so long though. Out of 30 days this month I have 26 appointments… My only … More The Busy Season
Imagine: Your daughter comes home from school with bruises on her body. No one said anything to you at pick up,no note, no email. You look at your beautiful kid and wonder what happened. You can ask your child but finding out the truth may prove impossible because your kid is nonverbal. So your only … More Why I Want a Cure
Something that I have feared is that Laura would take time away from Charlie. That I would spend more time trying to help her with her needs and I wouldn’t be able to give Charlie enough time and she might feel left out. It’s been a few months and I feel like I have a … More Shared Time
So we have had a lot of people asking so I’ll update. No, we don’t know where we are going yet. No, we have no idea when we will find out. And yes, I’m over it. We do know Laura’s developmental doc has talked with the efmp office about a week ago to help them … More A season of waiting
I had so much fun surprising my family with a visit home. While Germany has been an amazing home it is more AMAZING to be home. Today is my birthday and I get to see my youngest sister play a basketball for the first time, she is wearing my number. My heart is so full! … More Surprising my Family!
So a few days ago Charlie had to say goodbye to her first best friend. We met them at the park so they could play one last time and as we left Charlie looked up at me and asked if her friend was going on the airplane now and I told her yes. We wouldn’t … More Saying Goodbyes
It’s a few weeks since we found out Laura’s diagnosis. To say it’s been a tough couple of weeks would be an understatement. Charlie isn’t handling these changes well. I’m grieving still and it may be a while till I’m OK with this diagnosis. For now it’s still hard to think about our future as … More Struggling with Why