The Busy Season

  We have been so busy since our move to Vegas, I’m sorry I haven’t had a chance to update our blog lately. But hopefully I’ll be able to dive back in.   Our list for Laura’s appointments is still so long though. Out of 30 days this month I have 26 appointments… My only … More The Busy Season

Why I Want a Cure

Imagine: Your daughter comes home from school with bruises on her body. No one said anything to you at pick up,no note, no email. You look at your beautiful kid and wonder what happened. You can ask your child but finding out the truth may prove impossible because your kid is nonverbal. So your only … More Why I Want a Cure

Shared Time

Something that I have feared is that Laura would take time away from Charlie. That I would spend more time trying to help her with her needs and I wouldn’t be able to give Charlie enough time and she might feel left out. It’s been a few months and I feel like I have a … More Shared Time

Saying Goodbyes

So a few days ago Charlie had to say goodbye to her first best friend. We met them at the park so they could play one last time and as we left Charlie looked up at me and asked if her friend was going on the airplane now and I told her yes. We wouldn’t … More Saying Goodbyes

Struggling with Why

It’s a few weeks since we found out Laura’s diagnosis. To say it’s been a tough couple of weeks would be an understatement. Charlie isn’t handling these changes well. I’m grieving still and it may be a while till I’m OK with this diagnosis. For now it’s still hard to think about our future as … More Struggling with Why